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Member support grants

All members or beneficiaries of the scheme can apply for support and assistance grants. The grants are to support:

  • people with Stage 1, Stage 2 and Special Category Mechanism Hepatitis C and HIV
  • spouses, civil or long-term, partners of deceased beneficiaries  

To ensure help gets to those most in need, we primarily provide support to those on lower incomes.

Grants available

Income top-up support

Income top-up support is available for:

  • people with HIV, Hepatitis C Stage 1, Stage 2 and Special Category Mechanism
  • spouses, civil or other long-term partners who lived with a beneficiary who has died

You can apply if your household income, including benefits, is below a certain threshold. You can receive payments to top-up your income to that threshold.

We reassess the level of support available each year. We base this on levels of demand and any changes in household incomes and inflation.

How to apply

To make a claim you need to download and complete an application form (PDF: 166KB).

Alternatively, we can post an application form to you. To request this, contact us.

Completing the application form

You'll need to provide details of:

  • your income and any benefits or tax credits you receive
  • the income or benefits your partner or any other adults over 21 living with you receive

If you live with someone but do not financially support each other, you do not need to include their income. They are not included as an extra adult in the household when working out the threshold level.

Personal Independence Payments (PIP) or Attendance Allowance payments are not taken into account. But you should still mention them when you complete your application form.

We can give you advice on completing an application.

Lower value one-off grants

The need for beneficiaries to apply for lower value one-off grants should reduce with:

  • increased regular annual payments
  • income top-up support

However, there'll still be cases where beneficiaries need extra support. The types of support you can apply for include:

  • mobility aids
  • lower value health-related adaptations to the home
  • other support or care to help a person remain in their home
  • vehicle repairs or adaptations if a car is essential, for example to get to hospital
  • funeral plans, or in some cases the cost of a funeral
  • education or training courses
  • respite breaks and respite care due to treatment complications
  • prescription prepayment certificates

There'll be flexibility to cover other items where appropriate. This is if you can show:

  • the need for it
  • how it links to your illness
  • how it helps you become financially independent, particularly after a loved one's death

How to apply

To make a claim you need to download and complete an application form (PDF: 166KB).

Alternatively, we can post an application form to you. To request this, contact us.

Higher value one-off grants

Higher value grants can support those infected by providing:

  • higher value home repairs
  • home adaptations
  • costs for provision of care at home

To apply, you need to first check if your local authority, NHS or other public body can support what you need.

They may only provide a contribution or some of the support you need. We may be able to supplement that support.

If you wish to apply, you should explain why you:

  • need the repair, adaptation or care support
  • cannot fund it yourself or from any other source

These grants would also be means-tested.

If you're on a higher income, you may only receive a proportion of the cost of the item or service. This is because we may judge that you are able to make a contribution to the costs. We'll assess this on a case-by-case basis.

Applicants normally receive cash transfer to pay for the repair or adaptation or care support. For large-scale adaptations, we may pay this in phases.

How to apply

To make a claim you need to download and complete an application form (PDF: 166KB).

Alternatively, we can post an application form to you. To request this, contact us.

What the grants cover

Grants cover items or services needed due to a beneficiary’s Hepatitis C or HIV infection.

This could include:

  • health-related support
  • support to help with transition back into work after a period off work linked to the infection(s)

We can provide grants, if a spouse, partner or parent has died, for those in full-time education, including:

  • widows and widowers
  • long-term partners
  • children under 21

Grants support costs to help with transition after the infected beneficiary’s death. This might include courses to develop particular skills to allow you to get into/back into work.

Eligibility

You will not normally receive a grant for an item or service if you could get it or funds for it from another public body. This might be:

  • the NHS
  • your local council
  • the Student Awards Agency
  • a Motability scheme

In exceptional cases, we'll ignore this rule. Applicants will normally receive a cash transfer to allow them to pay for the item or service. If you receive such a grant, you need to keep copies of receipts or invoices to submit to us.