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Families and Estates of deceased beneficiaries

The scheme provides support to spouses, civil partners and long-term partners of an England Infected Blood Support Scheme (EIBSS) beneficiary who has died after joining the scheme. There is also support available for estates and family members.

If the person who has died was not a member of EIBSS or a previous UK scheme, you can apply on their behalf to receive Hepatitis C and/or HIV payments. Find out more information on applying to EIBSS.

Spouses, civil partners and long-term partners

Spouses, civil partners and long-term partners of deceased EIBSS beneficiaries could apply for:

  • a bereavement payment
  • discretionary one-off payment towards counselling
  • discretionary one-off payment towards a funeral grant
  • discretionary one-off payment towards employment training 
  • financial and benefits advice
  • income top up and child payments

If you qualify for any of these payments, you'll automatically be paid a winter fuel payment in December every year.

Estates and family members

Estates and family members of deceased EIBSS beneficiaries could apply for:

  • a bereavement payment
  • discretionary one-off payment towards counselling
  • discretionary one-off payment towards a funeral grant
  • child payments (if you're the primary carer of a beneficiary's child)

Bereavement lump sum payment

If a beneficiary died on or after 1 November 2017, eligible spouses, civil partners, long-term partners and estates of a deceased beneficiary could get a one-off bereavement payment of £10,000. You must inform us within 6 months of their death.

Check if you're eligible 

Partners are eligible if they were:

  • married, in a civil partnership or a long-term relationship when the beneficiary died
  • living together at the time of the beneficiary’s death
  • registered with EIBSS

If your partner was registered with a previous UK scheme and you did not claim a bereavement lump sum payment, contact us.

You will not qualify for payment if you were divorced, your civil partnership had been dissolved, or you were separated at the time.

Estates may be able to claim a bereavement payment if there is no eligible partner to receive this payment.

How to apply

Spouses, civil partners, long-term partners

To make a claim, you need to download and complete an application form for lump sum payment for bereaved spouses or partners (PDF: 151KB).

Estates

To make a claim, you need to download and complete an application form for lump sum payment for estates (PDF: 162KB)

We'll ask you to confirm that you're eligible to receive this payment and may ask you to provide evidence. 

We can post an application form to you. To request this, contact us.

What happens next

We'll aim to provide a decision on all applications within 30 working days.

If your application is unsuccessful

If you wish to appeal the decision, you should email or write to us within 3 months from the date on the letter. We may consider appeals received after 3 months in extenuating circumstances. 

Discretionary one-off payments

Funeral Grant

To claim a funeral grant the deceased beneficiary would need to be registered with EIBSS.

A discretionary payment of up to £4,500 is available for the person arranging the funeral, when an infected beneficiary has passed away.

To request this discretionary payment, complete the funeral grant discretionary one-off payment application form (PDF: 152KB)

Counselling

A discretionary one-off payment of up to £900 per year is available towards counselling costs. 

To apply for the counselling discretionary one-off payment, the applicant must be one of the following:

  • An infected beneficiary registered with EIBSS.  
  • A bereaved beneficiary registered with EIBSS. 
  • Family members of an infected beneficiary registered with EIBSS or previous schemes.

To apply for counselling you need to download and complete a counselling discretionary payment application form (PDF: 167KB)

If you are a family member of an infected beneficiary and have not receive a payment from us previously, you will need to complete a contact preferences and personal details form (PDF: 125KB).

Employment Training

A discretionary one-off payment per year is available to help towards employment training costs for bereaved partners.

To apply for this payment, you need to download and complete an employment training discretionary one-off payment application form (PDF: 177KB).

Income top-up payments

This payment is a discretionary monthly payment to increase your household income to help with general living costs. An assessment is made of your household income and if the income is below set thresholds an application can be made to receive payments.

Who can apply

To be eligible to apply for an income top-up payment, the applicant must be registered with EIBSS as a bereaved spouse, civil or long-term partner who lived with an infected beneficiary. 

How to apply

To make a claim you need to download and complete an income top-up payments and child payments application form (PDF: 264KB).

Alternatively, we can post an application form to you. To request this, contact us.

How it is assessed 

Income top-up payments are means-tested assessments and based on household income. The household income is calculated using all income received by the household, including earnings and benefits.

Bereaved beneficiaries would need to qualify for an income top-up under the threshold of £28,401.

 As part of this assessment we will check that you are receiving all of the help you are entitled to through benefits, tax credits or other sources of means-tested support.

We can help you to claim these benefits. If you are entitled to benefits, or other financial support, but do not claim this will be taken into account when calculating your household’s income.

Applicants will receive monthly top-up payments and the amount received will depend on the applicant’s status and the outcome of the assessment.

Details of income used for this assessment, and the amount that applicants may be eligible for, can be found in the income top-up and child payment support leaflet (PDF: 152KB).

These payments are reviewed on a yearly basis, but let us know if your circumstances change at any time.

 Assessment and verification of household income

Each applicant will be asked to submit a signed declaration of their household’s income.

This should be supported by either 3 months’ worth of bank statements or a combination of:

  • a statement from the person or company that pays the money
  • a court order
  • payslips
  • a full bank statement showing the amount and how often it's paid
  • your annual council tax statement for 2020 to 2021
  • a full benefit award statement (if applicable)
  • a full Housing Benefit award statement (if applicable)

Some income and allowances may include disability benefits and disability related elements. We'll need a copy of the full Award Statement breakdown to correctly exclude any disability related elements from the household income.

Child payments

These means-tested payments are to help with the costs of bringing up children of an infected beneficiary.

Dependants are children of an infected beneficiary up to the age of 18 years, or up to 21 if in full-time education.

These payments are available to the primary care provider of the child or children. 

Infected beneficiaries may qualify for a child supplement by completing an income top-up and child supplement form and be assessed as having a household income under £37,900.

Bereaved beneficiaries would need to qualify for an income top-up under the threshold of £28,401.

If you're the primary care provider of a child or children of an infected beneficiary but not a beneficiary yourself, you may still be entitled to apply for support for the child or children for who you're caring for. This will be means-tested in the same way as for income top ups for bereaved spouses and partners.

Who can apply

To be eligible to apply for a payment for children, the applicant needs to be registered with EIBSS. Everyone registered with EIBSS holds a unique reference number and will be in one of the following groups:

  • Someone historically infected with HIV or hepatitis C from NHS blood or blood products.
  • A bereaved spouse, civil or long-term partner who lived with an infected beneficiary.
  • Primary care providers of an infected beneficiary’s biological child or children.

How to apply

To make a claim, you need to download and complete a child payments application form (PDF: 262KB).

Alternatively, we can post an application form to you. To request this, contact us.

Details of income used for this assessment, and the amount that applicants may be eligible for, can be found in the income top-up and child payment support leaflet (PDF: 152KB).

Income top-up and Child Payment backdating payments

Due to a recent change in calculating household incomes to exclude disability-related elements, EIBSS are reviewing previous applications for financial years 2018/19, 2019/20 and 2020/21 to establish if any disability-related elements have been included in these incomes.

This may result in a recalculation of previously awarded payments and an additional payment.

What happens next

This backdating process requires a re-assessment of any previous applications for disability-related payments, which may have been included in the following:

  • Council Tax Reduction (CTR). 
  • Employment and Support Allowance (ESA). 
  • Incapacity Benefit. 
  • Income Support. 
  • Jobseeker's Allowance (JSA). 
  • Local Housing Allowance/Housing Benefit. 
  • Universal Credit (UC). 

Information to be reviewed

EIBSS are reviewing information submitted previously for financial years 2018/19, 2019/20 and 2020/21 to enable any disability benefits or elements to be identified and recalculated. The information under review will be:

  • a statement from the person or company that pays the money
  • a court order
  • payslips
  • a full bank statement showing the amount and how often it’s paid
  • annual Council Tax statement for the previous year
  • benefit award statement (showing breakdown of benefit in case any elements are disability-related)
  • Housing Benefit award statement (showing breakdown of Housing Benefit award in case any elements are disability-related)

If we require any further information, we’ll notify you once your application has been reviewed.

If you do have your records for financial years 2018/19, 2019/20, and 2020/21

To establish what your income is made up of, we require a copy of your:

  • benefit award statement (showing a breakdown for any disability-related element)
  • Housing Benefit award statement (showing a breakdown for any disability-related element) if you claim this benefit

If you have received any income which includes a disability-related element, and have the information available, you can send it to us by Freepost at:

FREEPOST EIBSS (valid within the UK only)

Or you can use our postal address:

EIBSS

NHSBSA

Bridge House

152 Pilgrim Street

Newcastle Upon Tyne

NE1 6SN

You can also email it to us at nhsbsa.eibss@nhs.net

If you do not have the records for financial years 2018/19, 2019/20, and 2020/21

The Income top-up and Child Payments application process is evidence based, so we’re requesting historic benefit award statement information from the Department of Work and Pensions (DWP). This will allow us to review each previous application covering financial years 2018/19, 2019/20, and 2020/21.

This may take several months to complete, so previous applications will be reviewed separately to any new application for the 2021/22 financial year.

Backdating information

EIBSS can accurately backdate any recalculation from 1 April 2018 when the Income top-up scheme review was completed, and all previous Alliance House scheme members were moved onto the same consistent criteria.

Interest rates

The Department of Health and Social Care (DHSC) have confirmed interest will be applied to any backdated payment amount at the rate of 8%.

Winter Fuel payments 

If you have applied for any of the above payments, you will automatically receive a winter fuel payment every December.

If you do not apply for any of the payments above, contact us as you may still be eligible for the winter fuel payment.

Financial and Benefits Advice

There is a range of financial and benefits advice available for partners of a deceased beneficiary.