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People infected with HIV

The scheme recognises that individuals living with HIV face extra costs. Financial support is available for:

  • new applicants to the scheme
  • members of previous UK schemes

New applicants to the scheme

How much you could get

 If you have HIV you can claim:

  • a lump sum which will depend on circumstances:
    • An infected child under 18 years old, will be £41,500
    • Single adult without dependents, will be £43,500
    • Married adult without dependents, will be £52,000
    • Infected person with dependent children, will be £80,500
    • Infected intimates - a partner or spouse who's entitled to payment due to HIV transmission by blood, blood products or tissue, will be £23,500 
    • Infected intimates - before birth, time of delivery or by breast feeding from a mother who is entitled to payment due to HIV transmission, or is herself an infected intimate - for the child who is married £23,500 and for the other child £21,500
  • regular payments - currently £18,000 a year
  • annual winter fuel costs £519

The payment amounts and assessment criteria may be reviewed in the future. This helps us respond to the changing needs of beneficiaries and latest clinical evidence.

Check if you're eligible

If you were infected with HIV as a result of NHS treatment

You'll need to confirm:

  • you have HIV
  • you are living in England, or lived in England immediately before you moved out of the UK
  • you have not already received any payments from another UK scheme
  • you are not currently eligible to receive funds from another scheme
  • it's likely that you received HIV as a result of NHS treatment in the UK before February 1992 (in the form of a blood transfusion, a tissue transplant or blood products)

All NHS blood in England was tested for HIV from October 1985 onwards. It is unlikely you would have received HIV through infected blood after 1985.

If you were infected with HIV by someone infected by NHS blood

You'll need to confirm:

  • you have HIV
  • you live or lived in England
  • it's likely that the infection came from someone infected by NHS blood (the person must receive payments from us or the Skipton Fund – if they don’t, they will need to apply to us first)
  • how you contracted the infection

You could have contracted the infection by:

  • sexual transmission
  • from mother to baby
  • accidental needlestick injury

If you contracted the infection from sexual transmission, you must also confirm:

  • you were with the person who infected you at the time, either in marriage, civil partnership or long-term relationship, and living together
  • your spouse or partner were unaware they had the infection, or you both took reasonable precautions to prevent transmission at the time of you contracted the infection

How to apply

It's unlikely that someone infected with HIV has only recently been diagnosed.

However, if you've recently been diagnosed and have never registered with us, you can apply.

To make a claim you need to download and complete an HIV primary eligibility application form (PDF: 208KB).

To request this, contact us.

Medical practitioner’s evidence

As part of the application we will need a medical practitioner to provide evidence for the answers you give on the application form.

This should be an HIV clinical specialist. If you are not under the care of a specialist you may wish to discuss your application with your GP. They may be able to refer you or provide the information we need.

The medical practitioner completes the form to confirm you have HIV.

We cannot approve your application if it is sent to us with:

  • no evidence
  • insufficient evidence

What happens next

We'll provide a decision on all applications as soon as possible. It may take longer if we need to ask you or your doctor for further information.

If the evidence clearly supports your answers on the application form, we'll approve your application for HIV support.

You'll then receive your lump sum and your regular payments will start. Your regular payments will backdate to the date you submitted your application.

If your application is unsuccessful

If you wish to appeal the decision, you should contact us within 3 months from the date on the letter. We may consider appeals received after 3 months, but only if you can provide a good reason for not contacting us earlier.

Find out how to appeal.

Members of previous schemes

How much you could get

You'll already have received lump sum payments from the Skipton Fund, MFET or another UK scheme.

If you have HIV you'll have received a lump sum from the Macfarlane Trust or Eileen Trust. You'll also receive regular payments from us, which are £18,000 a year, plus £519 winter fuel costs.

If you have HIV and Hepatitis C (co-infection) you'll have received a lump sum from Macfarlane or the Eileen Trust, and from the Skipton Fund. You'll also receive regular payments from us, which are currently £22,000(Hepatitis C Stage 1) or £36,000 (Hepatitis C Stage 2) a year, plus £519 winter fuel costs.

The payment amounts and eligibility criteria may be reviewed in the future. This helps us respond to the changing needs of beneficiaries and latest clinical evidence.

How to transfer to the new scheme

If you were a beneficiary of the Skipton Fund or MFET before November 2017, you can transfer to the new scheme by giving your written consent.

  1. You should have received a letter from your scheme telling you about the change and asking for your consent to transfer your details to us.
     
  2. Once we have received your written consent, the relevant charity will transfer your details to us. 
If you have not provided written consent, you will not receive payments from November 2017. You cannot remain on your current scheme as it will have closed.

If we haven't contacted you

If you have not received a letter from us, you should get in touch with your current scheme(s). Check that they have your current address.

What happens next

As long as you provide written consent, your details will be transferred to the new scheme.

If you were getting regular payments, you'll start to receive these from us.

We'll also tell you how to apply for an extra support you might be eligible for.

Other financial help

You may also be eligible for support and assistance grants.